Meniers disease

[Bri w]

Apart from information sources like wiki has anyone got any knowledge of it. And does anyone want Street R? Should read menier's.

[timwilky]

good friend suffers from it. It has screwed up his balance and known to fall over without the aid of alcohol.

Sorry to read this.

[Messie]

My mother had a severe attack of vertigo and all the associated symptoms. After she recovered from that her very thorough GP sent her for brain scans.

It came back that she has a benign tumour (auditory neuroma) in her brain behind her left ear. Some months later she had it removed, successfully, at Addenbrokes and has been fine ever since, apart from some hearing loss.

It may be worth checking out that it really is Meniers, and not something else going on in the brain and or ears.

All the best

[dirtydog]

Kitkat says her uncle has got Meniers. It started about 4 years ago and he collapsed at work one day, thought he had been lifting too many heavy things. It got gradually worse over the next 6 months, constant feeling of motion sickness. Got his diagnosis of Meniers was put on tablets (she thinks) and symptons started improving in about 3/4 months.
Kitkat says if you need any more info about it she can ask her mum!

[xXBADGERXx]

An ex of mine had it and had to wear discrete hearing aids , didn`t even know they were there . Her balance was affected and she was a hand holder all the time .

[timwilky]

My mother had a severe attack of vertigo and all the associated symptoms. After she recovered from that her very thorough GP sent her for brain scans.

It came back that she has a benign tumour (auditory neuroma) in her brain behind her left ear. Some months later she had it removed, successfully, at Addenbrokes and has been fine ever since, apart from some hearing loss.

It may be worth checking out that it really is Meniers, and not something else going on in the brain and or ears.

All the best

same as my sister in law. In her case at age 26. urgent removal 2 days after it was detected. Doc wanted to put her on anti depressants as she was going to see him every week. it also caused her face to drop and she had to have an eye stiched closed for 2 months. She was funding her nursing by modeling at the time so that had to stop.

She now has a bone anchor earing aid, finished her nursing degree and now works on an ENT ward. Funny is with phone when she puts it to the wrong ear and says somebody is p1ssing about there is noone there.

Bri, as Messie says ensure it is Meniers and nothing more sinister. You met my mate with Meniers at my 50th. It certainly isn't life destroying. but life changing.

[fenjer]

My friends mum has had it for years - ever since I've known her, so about 17 years...

like Tim says, it's life changing, but not the end of it. Most days she was fine, able to do everything you'd expect and more. She had an "episode" (loss of balance, unable to get out of bed without feeling ill) maybe once every 5-6months that lasted a day or so. But would recover quickly.

And sydney would very much like a street triple to keep him company in the garage... if ya know.. ;)

sending big hugs and positive vibes.

[Teejayexc]

Apart from information sources like wiki has anyone got any knowledge of it. And does anyone want Street R? Should read menier's.

S'funny that, mate was diagnosed with this, he also had a Street R, d'ya think it's cos odd number of cylinders aren't balanced properly?

[punyXpress]

Bri, does whoever diagnosed this know all about your golf ball blow to the head?
Might be related to new problem.
Dont rush to dispose of your Triple - you WILL get over this!

[andrewsmith]

Bri, does whoever diagnosed this know all about your golf ball blow to the head?
Might be related to new problem.
Dont rush to dispose of your Triple - you WILL get over this!

Good point!
Bri its never nice to here about things like this, but get yourself sorted before selling up

[Quiff Wichard]

Thoughts and best wishes to you and your mrs bri ...

Dave n Mandy x

[Stephen McG]

My wife had a balance problem some years ago and I seem to remember that name cropping up.
She got tablets from doctor and problem went away.
When I get home, I will ask if she remembers name of tablets.

SMcG in Glasgow

[davepreston]

well you can always join me at the bar at AR then we'll see what we can do with any balance issues


but hope it will work out for you
dave

[Stephen McG]

The tablets were called something like Stematil.
They seemed to help and the problem went away.
My wife says that stress could bring it back.
hope this is of interest
SMcG in Glasgow

[Icanopit]

Bri, I was rushed into hospital 2 years ago with severe balance and nausea with an irregular heartbeat. The initial "knee jerk" prognosis was Meniers?? but after 3 days hospitalisation and treatment with a course of STAMATIL (think thats the name) tablets (used as an anti vomiting drug during pregnancy) I was sent home with the heart rythm problem that is controlled via other drugs. They also payed particular attention to the inner ear??
My symptoms as a comparison, whilst lying down and still ok, BUT when moving extreme dizziness and nausea could'nt stand up.

Think you may still have my phone number "if" a chat helps, keep asking questions, hope all ends well.

JOHN

[Bri w]

Thanks for all your messages of support. I've suffered the 'Dizzys' for about 6 yrs now, and its always been diagnosed as an inner ear infection. This year has been especially bad, and 5 courses of antibiotics haven't improved things one iota, led to more tests and the current diagnosis. Typically, its been turn the head feel dizzy. Lie back on the bed and the room spins, turn over in bed and the room spins. Bend over to pick something up and the world spins. Sadly the last twice I've took the bike out has seen me stop the bike to throw up - a couple of miles of 'making progress' then a few miles at 20mph.

Its a royal pain but I'm an awkward, cantankerous, bu99er and giving in is something to do when you're dead. I love my Street, so it will stay a while longer yet but I am conscious of being a danger to other road users when the wobbles occur.

[Milky Bar Kid]

Just seen this. Not good Bri. I take it you are pushing them for tests and such like to find out what exactly is going on in that head of yours?

[gruntygiggles]

Just seen this. Not good Bri. I take it you are pushing them for tests and such like to find out what exactly is going on in that head of yours?

+1 Bri

Firstly, very sorry to hear of this...my uncle was diagnosed with Meniers when he was quite a young man but it turned out to be something else entirely. It took 4 years for him to get the correct diagnosis, so I would say it is important to make sure that are given all of the necessary tests both for meniers and to rule out anything else before you take the diagnosis as a given.

Do you have any bupa cover? If you do, call them and use it.

If not, next time you see your doctor, take a list of your questions and make sure they are answered, including could it be related to a knock on the head that you suffered, could it be related to any other medical issues that have not been tested.

I really hope they can sort you out Bri...big hugs xxx